Home Sweet Home

Home Sweet Home

This little munchkin slept all night, woke up happy, and played with her brother all morning.

Dr. Fair told us that just being home could help with everything, and it totally has.

I feel like she has been herself for the most part today, which is a beautiful thing!

She is definitely a Momma's girl right now.

She has told me probably 50 times today that she loves me.

She comes up to me and kisses me, and wants to snuggle at any chance.

I am eating IT UP!

It's the best thing in the world to hear, and that bond is priceless.

I ended up taking her back to PCMC today to get a platelet transfusion,

her platelets were at 3-which were a lot lower than they thought they would be.

They took a CBC last night after her last dose of ATG, but we didn't want to stay another hour and a half for the results.

So with them being that low, we had to go up there again,

it was so nice though to have her port already accessed, and to just go with no pokes!

She was so happy and social with the nurses, and they all wanted to take her home...

and I don't blame them one bit.  She was winning me over as well, and she's mine. LOL

So the plan from here on out is to have 1 Home Healthcare visit to test Cyclosporin Levels,

and 1 visit at the Clinic at Primaries weekly. 

She will most likely be receiving transfusions at the clinic visits, till her levels start coming up on their own.

Dr. Fair is so optimistic about her doing well with all this, and it is SO good to hear that.

I am grateful for his knowledge, concern, care, and love for our sweet girl...

we are lucky to have him as her doctor and as a friend through all this.

I know he was meant to be her doctor, and I know we are in good hands.

What a refreshing, somewhat "normal" day it has been, I loved every part of it.