Monday, February 3, 2014

Can She Catch A Break?


The last two weeks I have been able to breath a little & take a break from taking Bella to clinic.
Matt has offered to take her and give me a break, and it's been SO nice!
We have started remodeling the house, and it's been crazy around here-staying at 3 different places while its done.

So when Matt took Bella to clinic on January 31st, her platelets were up slightly...
usually by Friday they are in the low 30's, and they were at 41!
Dr. Engle was happy they were up a bit, but for some reason Matt thought they were higher 
because she got a transfusion on Tuesday (not Monday) that week.
She did get a transfusion on Monday (Tuesday was the week before), so they were up a bit!

Monday rolled around (Feb. 3rd) and she was scheduled to have surgery on her mouth.
She had a clogged salivary gland underneath her tongue that had gotten bigger and bigger 
to the point that it was making her tongue stick up and was changing the way she talked.
She got a platelet transfusion that Monday-her platelets were 13.
She still didn't need a red blood cell transfusion which was nice...
the hard part was for Matt waiting for the surgery that wasn't till 5pm with a tired little, hungry girl.

She did well with the surgery, and they said she would be in pain but Tylenol would help her.
Well that night it was rough.  She got a fever in the middle of the night, and was in a lot of pain from her mouth.
When she has a fever we can't give her Tylenol cause it could mask a high fever which could mean infection.
Our thermometer wasn't being accurate at all, so I went to good old trusty Walmart at 4am to get a new one.
Luckily her fever didn't go over 99 for over two hours, so we were finally able to give her Tylenol for the pain.
She was in our bed all night, just crying off and on cause the pain.
I laid there and thought "when is this little girl gonna catch a break?"

Her poor little body is constantly dealing with something, and she is such a trooper every time.
I'm hoping this week she can recover quickly and Friday her levels will be even better!

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