Show Us What You Got

At our appointment on Friday, we left with a lot of changes.

Bella's levels had dropped even more, and even her ANC had dropped which hadn't in the last 2 weeks.

Her doctors have decided to take her off her 2 antibiotics, since they can effect her levels somewhat,

and they want to give her body every chance to make more blood.

It was important that she was on the antibiotics for the first 3 months, but isn't as critical now.

They have also decided to NOT transfuse her unless she is showing physical signs (like excessive nose bleeds, etc).

They said at this point (her 3 month mark) her body should be able to at lease maintain itself and not need transfusions.

We have been helping her body by giving transfusions, which ultimately can make the body lazy and not do it's job.

So for the next four weeks as we wait and see what her levels do, we will not transfuse her on a regular basis-unless she really needs it.
So she is going to be able to "Show Us What You Got".

We also will not need to go in on Mondays unless her Cyclosporine levels need altering...which is nice!

If that can stay between 200-300, we wont need to drive to Primary's, and we can do a CBC at AF Hospital.

Her levels were really high Friday night, so unfortunately we will need to go there this Monday.

Having these small changes actually make a huge difference!

Two less medications to convince her to take, one less trip to SL each week, and possibly no transfusions on a weekly basis...

make our lives much less crazy!

Tonight we all sat and watched a movie in our bed, and while we watched Ty had a little notebook

Uncle Craigy had given him while he babysat him.

He wrote a little note, stuck it under my pillow, and told me that I had to leave it there in order for it to come true.

When I read this sweet note, I couldn't help but cry.

It was THE sweetest, most sincere note that a brother could ever write for his sister.

I will keep it forever.  I will cherish it and his love for Bella always.  He is simply the best.

What it means to say:

"All I want is Bella will feel better"

Love him.