Friday, March 21, 2014

Support from Friends



 What a difference it makes to have friends come to clinic!
Our good friends Beau and Isabel are here visiting from NY, and haven't seen Isabella since she was 6 months old.
The night before her friday clinic visit, Isabel texted me to see if we would want them to come with us to her apt.
I was so flattered and touched that they would want to get up SO early and come with us...
it is rare that other people come with me, so when they do it is such a treat!

I told Bella that morning that they would be coming with us, and she got all excited!
What a big difference it makes to have friends there with her...
she loves it, especially showing them things all around the hospital and clinic.

We made it all week without going in for a transfusion, and I was SO anxious to see what her levels would be!
(especially since we didn't get any numbers on Monday for the first time)
Dr. Engel was there and came and told us how her levels were still rising, and even her platelets had gone up!
From the last Friday they were 11, and they had gone up to 17...which has never happened with platelets.
Her Retic had gone from 44 up to 55, the highest it has been!

It was such a relief and so rejuvenating to hear all of that.
We were in and out so quick, and to top it off Bella was in an extra good mood with her friends there.
We left and went to City Creek to meet Daddy for lunch, and to the "Disneyland Store" (what Bella calls it) where she found THE most perfect light-up Cinderella Shoes.
It was an amazing day with amazing friends. 

It was crazy to sit there with Beau whom we met 9 yrs. ago in NJ.
Who would have thought we would be sitting there all these years later, in a doctors office, with my daughter, going through what we have gone through...
Not me. But how grateful I am for him and Isabel and their friendship & kindness that day!

Let's hope we can just keep this record going with no transfusions...I just can barely believe it.
Once again, I feel soooo blessed!

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